Save the Date!

Fanconi Anaemia Conference and Social Weekend Sep 13th – 15th 2019

Following our successful but over-subscribed Fanconi Hope Conference weekend at Twycross Zoo in 2017, we have now arranged to hold our next event at a larger venue and for longer too.

This time it’s at the PGL Caythorpe Court centre in Lincolnshire, NG32 3ER, and will run from Friday afternoon to Sunday lunchtime, with accommodation available onsite. (Map)

The event is free of charge and will be open to people living with Fanconi Anaemia as patients, carers and close family members in the UK and Ireland.

The event will be a chance to meet up with other families living with FA and also to learn more about Fanconi Anaemia. Our speakers will include a variety of medical practitioners to guide you through the complexities of FA, with plenty of opportunity to ask difficult questions in an informal setting.

Creche facilities will be available for infants, as will a variety of supervised indoor and outdoor activities, both sedate and sporty, for children aged 7-16, and some events for adults too.

We will have use of extensive meeting facilities in the Tudor Courthouse building for both formal and informal sessions for parents, FA teens & adults throughout the weekend.

More information on how to book your place and about the agenda will be available soon. Our aim this year is to ensure that there is room for all FA patients and families wishing to attend.

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