Fanconi Anaemia Standards of Care Guidelines

• UK Standards of Care Guidelines (Fanconi Hope/NHS): Standards of Care for Fanconi Anaemia affected individuals and their families.
• US standards of Care Guidelines ( Fanconi Anemia Research Fund): Fanconi Anemia: Guidelines for Diagnosis and Management.

Fanconi Hope Leaflets and Information Sheets:

Leaflets and Information Sheets have been prepared by Fanconi Hope on a number of topics. Here is a List and summary description of our Information Sheets to allow you to download the ones you want. If you have suggestions for further topics please contact us.

Leaflets

• General Leaflet on FA, the Charity and how to donate:For the general public.
•  The Genetics of Fanconi Anaemia Patient Information Leaflet: Introduction to FA, diagnosis and treatment.
• About FA Infographic (from FARF): All About FA Single sheet infographic.

Information Sheets

• • • About Fanconi Anaemia for Non-FA specialist Medical Professionals
      • This is a useful document to take to your doctor or your hospital summarising FA as it is aimed at medical professionals who are not FA specialists.
    • About Fanconi Anaemia
    • About Fanconi Hope
    • Advice on Nutritional Problems for Patients with Fanconi Anaemia
    • Charity Collections in England and Wales Information Sheet
    • Education and Fanconi Anaemia
    • Genetic Testing
    • Getting involved in promoting people to register as potential
      bone marrow donors
    • Head & neck squamous cell carcinomas in FA
    • PGD HLA Selection IVF in FA
    • Three Ways the Fanconi Anemia Research Fund can help you
    • Travel Insurance for individuals affected by Fanconi Anaemia
    • Trips, Events and Wishes for FA Patients
    • Vaccinations for individuals affected by Fanconi Anaemia

Useful Information from the Fanconi Anemia Research Fund

• Squamous Cell Carcinoma Fact Sheet for Dentists Please pass a copy of this on to your Dentist so they know what to look for when doing regular surveillance
• Squamous Cell Carcinoma Fact Sheet for ENT Specialists  Please pass a copy of this on to your ENT Specialist so they know what to look for when doing regular surveillance
• Educational resources for FA Patients and Families on FARF Website