Keeping Track of Blood Counts

Keeping track of blood counts following diagnosis and prior to bone marrow transplantation is important.

You can download an Excel spreadsheet to keep track of blood counts, and to send to Prof Hanenberg here: Blood Count Log

FA Adults Weekend

Fanconi Hope, in conjunction with our Netherlands counterpart FA support organisation, are sponsoring an FA Adults weekend from Fri 4th – Mon 7th Sept, 2020 in Efteling Park in the Netherlands.  Efteling is the largest theme park in the Netherlands and is ‘a unique park in the middle of nature’. It includes exciting rollercoasters, enchanting attractions and spectacular parkshows.

The event, arranged by and run by FA adults, is an opportunity for FA Adults age 18 and over from our two countries to enjoy a weekend of relaxation, excitement, enjoyment and socialising with other FA adults in this very traditional and somewhat unusual theme park. Accommodation for a total of 18 people is being provided on-site in 2 lodges. Beth Lee will be on hand to talk about FA issues if required, but primarily this weekend is a chance to get away from it all and have a good time.

Fanconi Hope will pay for travel, accommodation, Park entry fees, breakfasts and evening meals for each participating FA Adult.  9 places are available to UK FA adults.

The Itinerary

  • Fri 4th Sept – Travel to Efteling in time for an evening meal together.
  • Sat 5th and Sun 6th Sept – Enjoy the Park!  Evening meal back at the larger of the two lodges.
  • Mon 7th Sept – Depart for the UK in the morning.

How to book: Please contact Beth Lee at to register your interest in this event.

How to get there: Flights from most UK airports to Schipol Airport, near Amsterdam, and then by train/bus to the Park.

The Accommodation

Accommodation is at Loonsche Land within the Park, in 2 lodges; a 12 person lodge and a 6 person lodge. Get directions.

More About Efteling Park

Exciting rollercoasters, enchanting attractions and spectacular parkshows. Everyone will find what they are looking for in Efteling. The largest theme park in The Netherlands and a unique park in the middle of nature.

In the autumn Efteling turns into an enchanting world, full of autumnal colours and scents. The autumn sun radiates through the trees and the mushrooms shoot out of the ground in the Fairytale Forest. Discover a stream of attractions and a deluge of pleasure at the enchanting entertainment in the World of Wonders.

Download the Efteling-app here

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