Join Our Facebook Page (Public)
Fanconi Hope has a public Facebook page where you can interact with other FA families and Fanconi Hope supporters.
Join Our Private Facebook Group
We also now have a ‘closed’ Facebook Group: Fanconi Hope Family Support Group for more private discussions.
Other Groups You May Be Interested In
Because of the rarity of the condition it is well worth joining in the Fanconi Anemia Research Fund’s (FARF) Facebook Pages too as these have a much wider audience/participation.
FARF has a public Facebook page for information sharing and a ‘closed’ Facebook Group: Fanconi Anemia Research Fund’s Family Support Group for more private discussions amongst patients and families worldwide. To join in their closed group you will need to contact Marie Sweeten, their Family Services Director.