The UK and Ireland Fanconi Anaemia Registry

Fanconi Hope has fully funded the creation and maintenance of the first UK FA Registry, to track patients’ health over many years as part of a long-term study.
For this to be effective, we need you as patients and parents to be involved, contributing to the Registry on a regular basis, by interacting with Beth Lee, our FA Research Coordinator who is Fanconi Hope’s direct link to the Study.
Register below for more information.



All information and services are free, and your information is kept confidential.

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