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Join in our Social Media Discussions
Because of the rarity of the condition it is also well worth joining in the Fanconi Anemia Research Fund’s (FARF) Facebook Pages too as these have a much wider audience/participation. FARF has a public Facebook page for information sharing and a ‘closed’ Facebook Group: Fanconi Anemia Research Fund’s Family Support Group for more private discussions amongst patients and families worldwide. To join in their closed group you will need to contact Jordan Deines, their Family Services Director.