Joint UK – Netherlands FA Adults Weekend 2020 Invitation

Are you a UK FA Adult age 18 or over? See the invitation to attend our joint UK…


Rare Disease Day - Fanconi Hope's Contribution

Collectively, rare diseases are not rare at all!  1 in 20 people will live with…


December 2019 Fanconi Hope Newsletter

Here is our latest Fanconi Hope Newsletter to give you something to read over…


Rare disease charities launch a collaborative Alliance – “Together for Healthy Marrow”

A group of rare disease charities specialising in acquired and inherited rare…


Congratulations to all our runners in the London Landmarks Half Marathon!

Thanks to Marie Kelly, Matt Garisch, Darren Walsh, Barry Peake and Asa Bailey…


Can you help a UCL Research Study?

Issi Platt, iBSc Student Women’s Health at the University College London…


Need to talk to someone about Fanconi Anaemia?

We now have a UK FA Coordinator, Beth Lee, to help you in dealing with…


Progress on our Website Upgrade

Thank you for your forbearance whilst we have been significantly upgrading our…


Coming Up! The 9th Annual Meeting of the International Fanconi Anaemia Gene Therapy Working Group.

The 9th Annual Meeting of the International Fanconi Anaemia Gene Therapy…


UK Fanconi Anaemia Registry Project Extended to July 2024!

Beth Lee, our Research Coordinator We are delighted to announce that thanks to…