Can you help a UCL Research Study?

Issi Platt, iBSc Student Women’s Health at the University College London (UCL), is seeking your help with a research study being conducted by UCL.

The study aims to explore the opinions and knowledge of those in heritable disease communities such as the Fanconi Anaemia community regarding genome editing and its applications.

Can you help with a research study into ‘Patient attitudes to genome editing for prevention of heritable disorders: Social and Ethical implications?’  

This research is in the form of an online survey. The survey will explore the different aspects of the technology itself, as well as its applications in a medical setting for the treatment of heritable disease. The study will also explore the attitudes of people with experience of heritable diseases towards the introduction of genome editing in embryos for correction of mutations.

The study is open to a variety of people within the heritable disease communities, those affected and also their family members. Additionally, anyone who is involved in the community but does not have a family member affected is also welcome to take part.

You can find the survey via the following link:

The survey can be completed via the web link on smart phones, on laptop or desktop and should not take more than 15 minutes to complete. Your time and input will be truly appreciated.

If you have any questions, please don’t hesitate to contact Issi by email: issi.platt.16 at

Please note this study is time limited – please respond on or before 22nd March 2019.

Share this page