We Are Fanconi Hope

We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.

Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.

Join the UK Fanconi Anaemia Registry

Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.

Make A Difference

Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.

Latest News

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Years

It’s hard to believe but it’s now 12 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.

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Raised for Research and Family Support
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in Sponsored Research Projects
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The UK and Ireland Fanconi Anaemia Registry

Fanconi Hope has fully funded the creation and maintenance of the first UK FA Registry, to track patients’ health over many years as part of a long-term study. For this to be effective, we need you as patients and parents to be involved, contributing to the Registry on a regular basis, by interacting with Beth Lee, our FA Research Coordinator who is Fanconi Hope’s direct link to the Study.

Register below for more information.
All information and services are free, and your information is kept confidential.

Sign-up for Updates

Join our mailing list and we’ll keep you updated with our work, special events and ways in which you can make a difference. Your email will not be shared.