We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
The charity ‘Over the Wall’ is running completely free-of-charge online activity camps for children aged 8-17 with health challenges, as well as Sibling Camps and Family Camps. For the first time, families affected by Fanconi Anemia are now included. If you are interested, please don’t delay – contact Beth Lee now at beth.lee@fanconihope.org Camp in
Here’s our latest Fanconi Hope Newsletter for you to read– 11 pages of updates, information, stories and pictures! (4MB PDF)
Read about the latest Tier 4 Government Shielding advice. Updated on 21st December 2020
Read all about our £92,000 Grant to the University of Manchester for 3 year Proton Beam Therapy Investigation!
It’s hard to believe but it’s now 12 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
