COVID-19: Information for People living with Fanconi Anaemia
July 7th Update on COVID-19: Information for People living with Fanconi Anaemia here on our website.
April 4, 2020
We Are Fanconi Hope
We are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Join the UK Fanconi Anaemia Registry
Help us uncover and document the long-term health implications of Fanconi Anaemia by regularly interacting with our experts. They can then generate the information that is needed to ensure best practice care for every FA patient across the UK.
Make A Difference
Our work is made possible through the generous donations and funds raised by our supporters, FA families, their friends and relatives across the UK. Help us further research into this genetic condition and support families and individuals affected by Fanconi Anaemia.
Latest News
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December 2019 Fanconi Hope Newsletter
Here is our latest Fanconi Hope Newsletter: Fanconi Hope Newsletter Dec 2019.
December 23, 2019
Rare disease charities launch a collaborative Alliance – “Together for Healthy Marrow”
A group of rare disease charities specialising in acquired and inherited rare bone marrow failures have come together to form a collaborative alliance – Together for Healthy Marrow. The charities include Fanconi Hope, DC Action, PNH Support,DBA UK and the Aplastic Anaemia Trust. The alliance has been initiated in recognition that the operating environment is
April 10, 2019
1
Years
It’s hard to believe but it’s now 12 years since Fanconi Hope was formed, with the belief that we could have a big impact on many lives.
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Raised for Research and Family Support
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in Sponsored Research Projects