Charity Trustees

The charity trustees include 3 parent representatives and 3 clinicians with an interest and involvement in FA.

Bob Dalgleish, Chairman & Secretary

FA parent
Portsmouth

Louise Parry, Treasurer

FA parent
Manchester

Dr Stefan Meyer,  Clinician Trustee

Consultant Oncologist and FA Researcher
Manchester

Our Patron

The Duchess of Devonshire DL


“In accepting the role of Patron of the Fanconi Hope Charitable Trust I believe that this small charity can have a big impact on many lives. I have been impressed with the passion and drive of the Trustees and I, too, share this passion. Of course it is not enough to simply believe we will make a difference, and the charity cannot change anything without receiving the full support of those impacted by Fanconi Anaemia. I would encourage all who want to change the lives of those affected by Fanconi Anaemia to unite together behind this charitable cause.  There are so many stories about this terrible condition that one cannot help but be moved – often saddened, and it is incumbent on all of us to work together to give hope to those suffering because of Fanconi Anaemia.”

 

patron_signature

The Duchess of Devonshire DL

Global Partners

In searching for a cure for Fanconi Anaemia, Fanconi Hope recognises the need to work in a global context and is proud to be partnered informally with a number of international groups including:

The Fanconi Anemia Research Fund, Inc.

Was founded in the United States in 1989 to find effective treatments and a cure for Fanconi Anaemia and to provide education and support services to affected families worldwide.

Visit their website


Steven’s Association Moonrise

Is a nonprofit organisation based in Belgium that was launched in memory of Steven Keyes. Steven’s Association Moonrise is dedicated to raising money for the purpose of research into and raising awareness about Fanconi anaemia (FA) and its associated problems.

Visit their website


The Association Francaise de la Maladie de Fanconi

Provides information, assistance and support to patients and their families, encourages exchanges between physicians and researchers worldwide and encourage all clinical and basic research on the disease.

Visit their website


Deutsche Fanconi-Anämie-Hilfe e.V organisation

The German Fanconi Anaemia Help organisation supports families not just in Germany but across Europe.

Visit their website

Share this page