Charity Organisation and Finances

Charity Trustees

The charity trustees include 3 parent representatives and 3 clinicians with an interest and involvement in FA.

Thomas Carroll, Chairman 

Consultant Neurosurgeon and FA parent

Bob Dalgleish, Secretary

FA parent

Louise Parry, Treasurer

FA parent

Dr Mary Morgan,  Clinician Trustee

Consultant Paediatric Haematologist

Dr Alan Gilliespie,  Clinician Trustee

Consultant Oncologist/Gynaecologist

Dr Stefan Meyer,  Clinician Trustee

Consultant Oncologist and FA Researcher

Our Patron – The Duchess of Devonshire DL

“In accepting the role of Patron of the Fanconi Hope Charitable Trust I believe that this small charity can have a big impact on many lives. I have been impressed with the passion and drive of the Trustees and I, too, share this passion. Of course it is not enough to simply believe we will make a difference, and the charity cannot change anything without receiving the full support of those impacted by Fanconi Anaemia. I would encourage all who want to change the lives of those affected by Fanconi Anaemia to unite together behind this charitable cause.  There are so many stories about this terrible condition that one cannot help but be moved – often saddened, and it is incumbent on all of us to work together to give hope to those suffering because of Fanconi Anaemia.”



The Duchess of Devonshire DL


Section to be added

Global Partners

In searching for a cure for Fanconi Anaemia, Fanconi Hope recognises the need to work in a global context and is proud to be partnered informally with a number of international groups including:-

FARF Logo The Fanconi Anemia Research Fund, Inc. was founded in the United States in 1989 to find effective treatments and a cure for Fanconi Anaemia and to provide education and support services to affected families worldwide.
 steven-logo-hq Steven’s Association Moonrise is a nonprofit organisation based in Belgium that was launched in memory of Steven Keyes. Steven’s Association Moonrise is dedicated to raising money for the purpose of research into and raising awareness about Fanconi anaemia (FA) and its associated problems.
AFMF 2 The Association Francaise de la Maladie de Fanconi provides information, assistance and support to patients and their families, encourages exchanges between physicians and researchers worldwide and encourage all clinical and basic research on the disease.
60424_Logo_ohne_Schriftzug[1]  The  Deutsche Fanconi-Anämie-Hilfe e.V organisation  (German Fanconi Anaemia Help) supports families not just in Germany but across Europe.

















Be Sociable, Share!