About Us

More about Fanconi Hope

Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-

In 2008 three parents of affected children, Thomas Carroll, Richard Kawalek and Bob Dalgleish started the Fanconi Hope Charity to fund research into this disease, to help engender consistent best practice treatment across the UK by initiating and running an NHS FA Clinical Network and to provide much-needed support to affected families through the provision of information and improved family contact. The Charity is very fortunate to work under the patronage of The Duchess of Devonshire, who takes an active part in Annual Trustee meetings.

Due to the rarity of the disease Fanconi Hope has had to reach out internationally, with the US-based Fanconi Anaemia Research Fund (FARF) being our principal partner. FARF provides considerable support and guidance and we are able to use the services of their Scientific Advisory Board for Fanconi Hope-sponsored research projects in the UK.

Although the charity is small and staffed by volunteers in their spare time, Fanconi Hope has been able to make significant progress in a number of areas:

Further information on the Fanconi Hope Charity Organisation and Finances can be found here

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