Facing the Future Together
Please see posts at foot of page for the latest Charity News
Fanconi Hope is currently fundraising for further research, in particular for a 3 year Study into the Long term Effects of Fanconi Anaemia to be led by Manchester University and funded by Fanconi Hope. This study will fund a UK FA Coordinator who will create and maintain a patient-led UK National Patient Registry in order to improve patient care and facilitate research. The Coordinator will act as a point of contact for patients & families, and clinicians & researchers. Please help us achieve this with donations large or small.
Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-
- To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
- To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
- To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
- To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, e.g., in the treatment of cancers in general.
Read more about the Charity and Progress to Date
How you can help:
- By donating directly to Fanconi Hope.
- By Fundraising for us: Please see Fundraising Ideas and our page on the resources we can provide to support you page on the support we can offer you.
- By Offering your skills and services to Fanconi Hope
- Successful bone marrow transplants rely on well-matched donors. Please join the Bone Marrow Registry and encourage your friends and relations to do this too.
How to Donate to Fanconi Hope:
Online: Single payments or direct debits. Pay by credit/debit card or Paypal. DONATE NOW. (You can also GiftAid online donations increasing their value by 28% at no extra cost to you).
By Post: Please send cheques payable to ‘Fanconi Hope’ to Fanconi Hope, 79 Sandown Crescent,
Cuddington, Northwich, Cheshire, CW8 2QN. By using this donation form you can GiftAid your donation, increasing its value by 28% at no extra cost to you.
By Standing Order: Please complete this Standing Order Form, send the top half to us at Fanconi Hope, 79 Sandown Crescent, Cuddington, Northwich, Cheshire, CW8 2QN and take or send the bottom half to your bank.
By Bank Transfer – please contact us for our Bank Details.
By Text: Text FANC01 followed by £1, £2, £3, £4, £5 or £10 to 70070 to donate to Fanconi Hope and make a difference today. So to donate £10, just text FANC01 £10 to 70070. And you can GiftAid your donation to add 25%
Need help? Contact Bob Dalgleish by e-mail , call 0300 330 1410 or write to Fanconi Hope at PO Box 905, Southsea, Hants, UK PO1 9JG
When you donate to Fanconi Hope you can be sure that the money will be spent responsibly and in ways that will benefit families affected by Fanconi Anaemia.
- Our 3 parent trustees and 3 clinician trustees all give their time voluntarily
- Every penny of the funds raised that we apply to research in the UK does exactly that. We have no management overhead associated with this as we have an arrangement in place with our US parent organisation, the Fanconi Anaemia Research Fund, to make use of their 15 strong scientific advisory board (which includes international representation) to identify, monitor and review appropriate research projects.
- We have been very fortunate in securing the services of the Duchess of Devonshire as our Patron to oversee the work of the Charity.
£8000 Grant Awarded to Fanconi Hope!
We are pleased to announce that we have been awarded a grant of £8000 by the Duke of Devonshire’s Charitable Trust to help fund our Study into the Long Terms Effects and Treatment of Fanconi Anaemia, led by Dr Stefan Meyer in Manchester. This grant will make a significant contribution towards the consolidation of […]
March 19, 2017
In Memory of Joel Walker
We have received this tragic news from Nigel Walker, who now lives in Plano, Texas about his son Joel who had Fanconi Anaemia. This follows the earlier loss of his daughter Joanne, also to FA. “It is with an even heavier heart that I send this note to everyone tonight. Around 7:30 pm on 1st Nov 2016 we […]
November 13, 2016