Facing the Future Together


The Charity

Please see posts at foot of page for the latest Charity News

Fanconi Hope is currently fundraising for further research, in particular for a 3 year Study into the Long term Effects of Fanconi Anaemia to be led by Manchester University  and funded by Fanconi Hope.  This study will fund a UK FA Coordinator who will create and maintain a patient-led UK National Patient Registry in order to improve patient care and facilitate research. The Coordinator will act as a point of contact for patients & families, and clinicians & researchers.  Please help us achieve this with donations large or small.

 Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-

Read more about the Charity and Progress to Date

How you can help:

How to Donate to Fanconi Hope:

Online: Single payments or direct debits. Pay by credit/debit card or Paypal. DONATE NOW. (You can also GiftAid online donations increasing their value by 28% at no extra cost to you).

When you donate to Fanconi Hope you can be sure that the money will be spent responsibly and in ways that will benefit families affected by Fanconi Anaemia.

  • Our 3 parent trustees and 3 clinician trustees all give their time voluntarily
  • Every penny of the funds raised that we apply to research in the UK does exactly that. We have no management overhead associated with this as we have an arrangement in place with our US parent organisation, the Fanconi Anaemia Research Fund, to make use of their 15 strong scientific advisory board (which includes international representation) to identify, monitor and review appropriate research projects.
  • We have been very fortunate in securing the services of the Duchess of Devonshire as our Patron to oversee the work of the Charity.
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Charity News

A Race for Life. Steve Moore Runs the London Marathon for Fanconi Hope

Thanks to Steve Moore for running the London Marathon this year for Fanconi Hope, raising over £770 so far through his JustGiving page. And thanks to both Steve Moore and Sasha Gillespie for raising awareness of FA in a great article published 2 weeks ago in the Belfast Telegraph called ‘ A Race for Life’ which you can download […]

June 3, 2017

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£8000 Grant Awarded to Fanconi Hope!

  We are pleased to announce that we have been awarded a grant of £8000 by the Duke of Devonshire’s Charitable Trust to help fund our Study into the Long Terms Effects and Treatment of Fanconi Anaemia, led by Dr Stefan Meyer in Manchester. This grant will make a significant contribution towards  the consolidation of […]

March 19, 2017

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In Memory of Joel Walker

We have received this tragic news from Nigel Walker, who now lives in Plano, Texas about his son Joel who had Fanconi Anaemia. This follows the earlier loss of his daughter Joanne, also to FA. “It is with an even heavier heart that I send this note to everyone tonight.  Around 7:30 pm on 1st Nov 2016 we […]

November 13, 2016

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