Guidance for Professionals

Guidance for ENT Specialists

Head and neck squamous cell carcinoma (HNSCC) is a significant threat for people with FA, regardless of bone marrow transplantation status. Not only is the incidence of HNSCC considerably higher than in the general population (500-700 times higher), patients with FA present with these types of cancers at a younger age than those without FA – the median age is 27 years. Regular screenings are critically important.

Download Fact Sheet for ENT Specialists   (Text and Fact Sheet courtesy of Fanconi Anemia Research Fund).

Guidance for Dentists

Head and neck squamous cell carcinoma (HNSCC) threat as above.

Download Fact Sheet for Dentists  (Fact Sheet courtesy of Fanconi Anemia Research Fund).

Guidance for Children’s Hand Surgeons

A guidance document for children’s hand surgeons concerning congenital hand anomalies in Fanconi Anaemia has been prepared by by Ms Grainne Bourke, Consultant Plastic Surgeon, Leeds General Infirmary, as has an A4 flowchart poster titled ‘Has this child got a Thumb or Radial Ray Abnormality?’ is available here

Guidance on Nutritional Management

A clinicians’ guide to Nutritional Management of Patients with Fanconi Anaemia has been prepared by Evelyn Ward, Paediatric Dietitian, St James’s University Hospital, Leeds, as has a guide for families; Advice on Nutritional Problems for Patients with Fanconi Anaemia

Information Sheets for Families

A set of information sheets on a variety of topics has been prepared for families.

 

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