Archive for the ‘Families’ Category

£8000 Grant Awarded to Fanconi Hope!

Sunday, March 19th, 2017

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We are pleased to announce that we have been awarded a grant of £8000 by the Duke of Devonshire’s Charitable Trust to help fund our Study into the Long Terms Effects and Treatment of Fanconi Anaemia, led by Dr Stefan Meyer in Manchester. This grant will make a significant contribution towards  the consolidation of the study and our ability to develop it as a long term activity with continued funding for Beth Lee to act as UK FA Coordinator, thereby providing the much-needed support to the FA community in the UK.  More about the study here.

Our thanks go to both the Duke of Devonshire’s Trust and to our patron, the Duchess of Devonshire, who invited us to apply for the grant.

 

Save the Date for FA Conference and Fun Day!

Sunday, March 19th, 2017
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Save the Date!

Saturday October 14th 2017

Fanconi Anaemia Conference and Fun Day

Organised by Fanconi Hope.

At the Twycross Zoo Conference Centre, Burton Rd, Atherstone, Warwickshire, CV9 3PX

– 10am to 5pm at the Conference Centre:  Conference and  opportunity for socialising and family fun at the Zoo itself.

– Evening Meal and a chance for more socialising at the Appleby Park Hotel nearby.

This is a chance to:-

  • meet up with others affected by Fanconi Anaemia.
  • learn more about FA and talk to clinicians and researchers in an informal environment.
  • meet our new FA Coordinator, Beth Lee.
  • take part in a world-wide study being led by Dr Eunike Velleuer and Ralf Dietrich.

The conference, dinner and zoo facilities are all free of charge. Overnight Saturday Accommodation available free on request.

If you or a family member are affected by Fanconi Anaemia and you would like to attend this free event, please register your interest here or contact us directly. More details will be published shortly, but you can register now to book your place.

Have your say! If you have any suggestions to make the event right for you, please contact us

How to get there:

Twycross Zoo is centrally located in the UK.

– By Road: Just 5 minutes from J11 of the M42

– By Rail: 20 minutes from Tamworth and Nuneaton Stations,  1 hr 42 mins London Waterloo to Nuneaton

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Download poster  Map  The Zoo

 

 

 

7th Annual International Gene Therapy Working Group Meeting

Friday, October 7th, 2016

Working Group LeafletThanks to Dr Juan Bueren and his team in Ciemat for hosting the 7th Annual International Gene Therapy Working Group Meeting being held on 7th October 2016 in Madrid.

The Working Group brings together world experts in Fanconi Anaemia, Gene and Cell Therapy, Gene Editing, Academic Research and Vector and Cell Manufacture to accelerate the move from research into clinical trials for improved treatments for FA.

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