What you CAN do with Fanconi Anaemia.

Here’s an encouraging story about Amy Parry on her forthcoming trip to undertake voluntary work in Cambodia – 8 years post-bone marrow transplant.

Amy was diagnosed with Fanconi Anaemia in April 2008, and by February 2009 she was in hospital getting ready for a bone marrow transplant. After her chemotherapy she had the transplant, and everything seemed fine. Unfortunately the transplant failed and she had to have another period of chemotherapy before a second transplant in May 2009.

There were a number of problems that followed, and many difficulties, but eventually in February 2010 she was allowed to leave hospital, albeit still being fed through TPN, to try and resume some sort of normal life. She returned to school after an absence of 18 months, and then began to resume normal life.

There continued to be a number of hospital appointments, tests and investigations, but things did return to almost normal, which is where she is now.

In October 2015 she had started Year 10 at school and there was a presentation from Camps International about a trip to Cambodia in July 2017.This consists of 3 weeks volunteering in local communities, leaving a lasting legacy from the work to be done, and some cultural experiences as well as the adventure – learning to SCUBA dive.

Amy asked to go, and we filled the form in, but inevitably we were asked for medical confirmation that she was fit to go. It took about 3 months before she was finally given the confirmation that she could go on the trip, although we are still trying to access a specialist diving report to confirm she can do the scuba diving.

We are putting this on the website to show that even when things seem at their worst (and we know what that feels like) there is light at the end of the tunnel, and there is no reason why anyone shouldn’t be able to do ‘normal’ things.

Amy also has to raise the money to go, and has a Just Giving page here

If anyone wants any further information, or perhaps for us to come and talk to a group, please contact us via Fanconi Hope.

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This entry was posted on Saturday, June 3rd, 2017 at 5:53 pm

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